Doctors and More Doctors

Well I'm trying not to get too aggravated with the medical community but it's difficult. I have back pain that 3 months' of PT going twice a week didn't help. I also noticed last year that I have right leg pain that is cyclical. It occurs every three weeks...sound like something we women get each month right?? Try telling that to my doctors and feeling pretty well rejected.

My physical therapist suggested a spinal specialist and I saw him in late December. He doesn't think that my back pain is coming from my back at all. Of course that begs the question "Where is the pain coming from?". He suggested seeing another doctor who loves challenging cases and I'm definitely one of those. This other doctor is a physical medicine and rehabilitation doctor. Okay I'm game to see what he has to say.

My primary care doctor has basically dropped me. My obgyn doesn't want to deal with me as the back and leg pain aren't obgyn related. My physical therapist let me go but it's with the understanding that I can come back if I find it necessary to do so.

I've been screaming for help and most of the medical community isn't willing to listen. My primary care doc has been alright but not the greatest...my obgyn is not the doc that I want but I can't have her as she is retired and my other choice is too far away in Atlanta.

I had a nerve test earlier this week to check to see if the nerves are causing any problems for me. It's called a upper extremity and lower extremity SEP (somatosensory evoked potential) I don't want to go through that again it hurt my right hand and my feet for 2 days. I had trouble sleeping that first night. My hand still is having trouble and my legs feel like I've pulled a few muscles in it. The pain from it drove me nuts!!! I won't get the results from it for at least 5-10 days so you'll have to wait.

I also was advised to find a rheumatologist to look at my hands as they are red. So I'm on the hunt for a rheumatologist now.

My guess, of course, is that it's endo related. I'm not thrilled to be speculating that it's endo since that means a trip to Atlanta for surgery. But I already know who I want surgery with...

~Jen